About

Welcome to our journey. My name is Dada, I will be taking you on the journey that led me to become an NICU mama. What I’ve learned so far, things I wish I knew, what are the lessons learned so far and just how I was able to navigate the first part of my journey.

The NICU journey is only a part of this wonderful journey. My daughter was also born with amniotic band syndrome. As a result of this she was born missing her left leg below the knee. She wears a prosthetic leg to walk. I want to share what we’ve experience in our short journey so far, how we navigate our daily lives, how is the outside world view. 

Follow us through this “peacefull” journey and feel free to share your stories as well so we can encourage each other.  

I want this to be a safe space for exchange for parents or caregivers who are going through a similar journey. Although I know that we may have some similarities, all journeys are different. I want us to engage without judgement.  Even if you are not in this journey, feel free to tag along with us, you may learn something new or ask questions or go to the resource page.